Wednesday, February 18, 2009
What a difference a year makes!
Sunday, January 25, 2009
Daddy's Girl
Saturday, August 02, 2008
Best Job Ever
I walked around with her for a bit, and soon enough she was asleep. That definitely has to be the best job ever!
Here is a pic of the little princess in all her current glory (now five months old) followed by one of her with her adoring siblings looking on. She's doing great, and we feel very fortunate!
Tuesday, May 20, 2008
No More Oxygen
Last night we had her on her tummy, and she was lifting her head up and wiggling around so that her body was moving to new places on her blanket. The kids got excited thinking she would be crawling soon, so we had to temper that enthusiasm, but it is so encouraging to see her taking these strides! Had everything gone according to schedule, she would be about two weeks old right now. Instead, she celebrated her three month mark on Sunday!
Monday, May 05, 2008
Big Weekend
The three girls looking good!
This picture of Eliza reminds me a lot of Madison when she was getting blessed. It's fun to be able to look back and have those memories. After having seen Savannah and Madison develop their personalities I am very eager to see what Eliza will be like. My guess is she will have a fighting spirit but be very insightful as to others emotions and needs. Time will tell. I just love being a dad and seeing these wonderful people become who they are.
The oldest and the youngest. It's very enjoyable to see how much the older children love holding Eliza and how cautious they are with her. She does lend a certain air of calm at times!
The whole gang! What a beautiful day, and what fun we had! Thanks to our family who traveled to be with us, and thanks to our wonderful friends who participated. I really felt the strength of the great men with whom I stood in those two circles. I can't think of another feeling to compare it with, but I won't forget it.
Thursday, April 24, 2008
Eliza at Home
The big moment! I had gone back to church while Bren and Eliza stayed at home. When I brought the kids back Eliza was snoozing in her bassinett. So we took them up to our room and here are their expressions!
Such well-behaved children--sitting so peacefully while mommy feeds Eliza. You can guess how long that lasted!
Sunday, April 13, 2008
All Together
The children were at church, so I went over for the 3rd hour and was congratulated by quite a few of our gracious ward members. Often it seems they are as excited about Eliza coming home as we are. At length I collected the kids and we headed home. They could barely contain their enthusiasm. We walked in through the garage and had to go up the stairs where Brenna had Eliza sleeping in our room. Brenna had the video camera out and got footage of the kids heading up the stairs with smiles on their faces. I went into the room before them so I could watch their expressions as they saw her. She was sound asleep in her bassinet. When the children saw her they all got somewhat sheepish and shy smiles on their faces that soon turned into wide, wide grins.
We spent the rest of the day monitoring the kids and trying to ensure they didn't love Eliza too much. On the whole they did great. It's just hard to speak softly. For Eliza it must be like us going to a rock concert. Her tolerance for noise and rambunctiousness will definitely have to increase. But she took it all in stride and is doing great.
Hunter and Madison enjoy Eliza's presence, but Savannah is particularly taken with her. She just wanted to stay in our room and be near Eliza the whole day. After a while we were able to distract Hunter and Madison so Savannah could have a turn holding Eliza. We got her all set up on the bed, and she probably held Eliza for 45 minutes or so--both of them as content as could be. I can tell that Savannah is going to be a second mother for Eliza--and I mean that in the best way possible. She takes the responsibility of being the big sister very seriously, and I believe that will only be more true with such a little one now in our home.
The only downers at all with the whole situation are that Eliza still has oxygen, albeit a tiny amount. So she still has the tubes in her nose and a little oxygen tank that we can carry around in a shoulder bag. We hope that she won't need the oxygen too much longer, but we just don't know. It is nice that it is so portable, though. Also, apparently she has reflux, which means a lot of spitting up. Hunter was similar, and he soldiered through it all like a champ, so we'll just have to see how Eliza does. As a parent it's just painful to watch them go through the seemingly continual spit up routine. Also, because of the reflux she makes a lot of grunting and groaning noises. She rarely cries, but she is plenty noisy. Poor girl. When she finally gets into a deep sleep though, she is so peaceful and angelic.
We love having her home and are bracing ourselves for the real parenting work that has now begun. What a blessing!
As a postscript, we took lots of photos and video today, but we had to send Bren's laptop away to be fixed this week, and my desktop is such a dinosaur that it doesn't have the proper interfaces to download the photos or video. So, my apologies, but I can't give you any visual proof. You'll just have to trust me that she's home, and as soon as Bren's laptop returns we'll get on the stick!
Sunday, April 06, 2008
On Hold
As you might expect it is a bit difficult to come to terms with. We've been on a bit of a rollercoaster over the last week-and-a-half or so. Once she took the bottle she started doing so well, that we basically thought it was a foregone conclusion she'd be home with us this weekend. Since that didn't happen we're a little unsettled as to how to deal with the situation. The emotions can only take so much, so now we're really trying to just stay on an even keel and not get too hopeful with the good news, but also not get too down with any bad news. No guarantees we'll be successful with that approach, but at least we're trying!
Sadly, we've become terrible at taking pictures, but I will say that I went down to the hospital this morning and fed her a bottle for the first time. Because I had been sick and then work has been busy this past week I hadn't actually held her for about two weeks. I was thrilled to really experience how much she's grown and to see how full her cheeks are and how her legs aren't little chicken legs anymore. She's getting so close to seeming just like a regular-size baby now. She's 5 lb 4 oz, and we know that a lot of full-term babies aren't much bigger than that. It's very encouraging, and she looks great! She's also very noisy. A lot of grunting and wiggling and complaining when she doesn't get her food in a timely fashion. She doesn't cry, she just makes noise. It's very sweet. I loved spending time with her today.
Friday, April 04, 2008
Delays
Thursday, April 03, 2008
One Day More
Monday, March 31, 2008
Less than a week?
Sunday, March 30, 2008
Leaps & Bounds
As for specific developments this week, Eliza is progressing by leaps and bounds. She is up to 4 lb 11 oz and gaining daily. Tomorrow will be six weeks since she was born, and she has added about 2 lbs since then. It's fantastic to watch her grow. Brenna worked really hard on the nurses this week to get them to allow Eliza to take the bottle. Thursday was technically Eliza's 34 week mark, so Bren was pushing for her to try the bottle that day. The nurse was hesitant because they generally round down on the day of birth to the nearest week. So, in their records when they say she was born at 28 weeks, that means 28 weeks exactly. Consequently, the nurse felt that Eliza wouldn't be 34 weeks until tomorrow. Brenna persisted, so the nurse, with trepidation, allowed her to feed Eliza from a bottle. They had just upped her feeding amount to 40 cc's that day, so the nurse was doubly concerned. Well, the concern was unfounded. Brenna said Eliza just attacked the bottle and downed it completely without any trouble. The nurse was absolutely astounded at how well she did. So they have continued to feed her from the bottle, and she continues to do very well. They started with two bottle feedings a day (again, this was on Thursday), and when we showed up tonight the gavage was gone and Eliza is now being completely fed by the bottle. She took 70 cc's tonight and polished it off in about 20 minutes or so. Like I said a few weeks ago--a regular Paul Bunyan!
She also passed her hearing test today and hasn't had a brady for several days. The nurse tonight told us that she believes Eliza doesn't understand how old she is. They are simply floored by her progress, and we are very grateful to be participating observants (I'm pretty sure that's not a proper phrase, and generally people don't observe something and yet participate at the same time, but that's what we're doing here).
So, I guess what I'm getting at is that if things continue to go well, the timeframe for her triumphant discharge is going to be sooner rather than later. I will continue to tell people probably four weeks away or so, just to limit my own hopes and expectations, but in my heart I believe it will be much, much sooner than that. Eliza has exceeded all expectations, and we are thrilled with her tenacious spirit.
Leaps and bounds, indeed (shout out to Trent with the usage of that word!).
A few pics and a new video:
Monday, March 24, 2008
Continued Progress
All snuggled up with no isolette to regulate her temp. Don't you just want to hold her?
Sunday, March 16, 2008
Week 4
The news on her end, once again, is all good. Early last week the NICU had another influx of premies, so they had to do some shuffling of babies in the various rooms to even out the workload on the nurses. Consequently, on Wednesday Eliza was moved to a new room. Goodbye, Sophia and Preston. We're sad to not get to spend time with their wonderful parents anymore, but Eliza's new room is actually quite a bit larger and very quiet, so we feel good about her new digs! Brenna hasn't been to that room yet, but she's looking forward to going down tomorrow (assuming we don't get too much snow here in Denver--they're talking about 18" overnight--yikes!). I'm still a few days away from being able to go down for another visit.
The updates we've received in the latter half of the week are these:
- Eliza is now up to 3 lb 8 oz. She's flying along! At 4 lb they will take her out of her isolette as they expect she'll be able to maintain her own body temperature at that point. I'm hoping for another week to 10 days there.
- She will be moved to "low flow" oxygen tomorrow, which basically means they will no longer be blowing any air in to help her keep her lungs open--she'll have to do that on her own. She will be receiving slightly more oxygen than room oxygen, but she is pretty low on that scale as well.
- She will start bottle feeding probably next week, or maybe the week after. Before coming home she needs to go 24 hours without being fed through the gavage. So, we have a while to go there.
- She's still having an occasional brady (drop of the heart rate). They consider them serious when they get down into the 50s. Eliza has been having about one of those a night, but she corrects them on her own without external stimulation, so that is good. She has to go five days without a brady before she can come home.
Sorry, no pics this week as we didn't take the camera with us on any of our trips as we usually wait until the end of the week to get our photos. Just look at last week's pics and imagine her about 1/3 lb bigger!
Sunday, March 09, 2008
Week 3
Tonight she had pulled the little oxygen tubes completely out of her nose and was breathing wholly unaided when I arrived. I don't know how long she had been like that but her oxygen level was exactly where it needed to be and the nurse (who is a very good nurse) was surprised to learn that the tubes weren't even in her nose. She was impressed with Eliza's lungs and we agreed that she is getting closer to the time when the tubes will be removed permanently. Every day we're getting a little nearer to her coming home.
As a side note about the hospital, we've really enjoyed getting to know Eliza's two "roommates" and their parents. Eliza is in a co-ed dorm with Sophia and Preston. They will both probably go home in the next three weeks or so, so they're a bit ahead of Eliza, but it's been fun to share the joys of seeing our children progress with those parents. It's comforting to be able to share experiences and realize that they know exactly what the difficulties are. In fact, both of them have had a far rougher time than we've had. Sophia was born at 26 weeks and weighed only 1 lb 8 oz. while Preston was born in a rural area at 31 weeks, but had no high tech equipment to monitor him and keep his lungs going, etc. Both sets of parents have had some stressful times over the last few months and we are so impressed with how they have handled everything. We're enjoying becoming part of that little community and are glad to have friends we can cheer for as their children do well.
At home Brenna is making great progress. She's been driving for the past few days and will make her first solo trip to the hospital tomorrow. That's a huge jump from where she was last week. She still gets worn out a lot more quickly than she used to, but every day is getting better. She tries to limit her trips up and down stairs, but she has resumed her role as boss, and the children are loving having mommy up and functioning. I'm pretty happy about it, too :-)
My oldest sister was in town for the past week and she did a great job of fitting right in and helping us wherever help was needed. Thanks, Aunt Jeanne, for your love and your willingness to help. We love you for it. And, thanks to the Cushings for letting us borrow their mom. We have been so fortunate to have family members willing to come out and help. What a huge difference that has made. We're so far in people's debt that we'll never be able to make it up, but the comforting thing is that we know people simply do it out of the goodness of their hearts. I was telling Preston's mom tonight that we read so many terrible things in the newspaper and see so many dreadful things on the news about what people do to each other, but my life's experiences have taught me just the opposite. There are so many good people who want to help and take care of others. People from all walks of life--we're all just people and kindness is something everyone can understand.
Anyway, enough verbiage. For this week just a few photos to share. Thanks everyone for your continued prayers and support. We know there are heavenly forces at work here.
Week 3 close up. We really enjoy the time we have with her when her eyes are open and she is looking around.
Here is Eliza's space--basically just her condo. When we come for a visit they bring in a glider (or two) for us to sit in. And that is how we spend our time with her.
Here's the first photo of all three of us. I'm looking forward to the first photo of all six (!) of us. That will be a very fun day.
Sunday, March 02, 2008
Week 2
Eliza does enjoy her pacifier. When we put it in her mouth she will suck at it, and it seems the most natural thing in the world. It's just funny to see how big it is in her mouth. Tonight the nurse squeezed a few drops of milk onto the pacifier while it was in her mouth, and after a couple of minutes Eliza started sucking at it for all she was worth. It was really fun to see her reaction and understand that she was enjoying the taste and was having such a positive reaction.
Other than that not much has changed from our previous updates. It appears it will be a bit slow and go from here, but I'm just thrilled to say that no problems have arisen, and she is plugging along. She's doing great with oxygen and reacts well to pretty much everything that comes along. Just pray for her to grow.
A picture and a few videos from this past week:
Generally when we arrive Eliza is sleeping pretty soundly. But after we check her temperature and change her diaper her eyes are usually wide open. This is a good example.
And, a video showing those wide open eyes. She's doing great!
I love watching her go after the pacifier in this one. Not sure how long before they'll let her try a bottle, but her sucking reflex is pretty impressive. Also, her cap is just adorable. That will be one of my favorite keepsakes.
Love that little smile!
Sunday, February 24, 2008
Closing Out Week 1
Sampling the digitary cuisine.
Grandma Jean's first look at her granddaughter. This was a great moment to share with my mother.
More demonstration of how tiny she is.
Some useful info in the commentary. Sorry the video is so dark. Can't really make anything out.
Nurse Lindsay showing her off before putting her back in the condo.
Day 7
Sister Vickie Moore made this beautiful blanket. It now sits over the top of Eliza's condo to keep it snuggly and dark. They took the lights off of Eliza Sunday morning. We hope they'll stay off, but they may have to put them back on. We'll see how it goes.
Love the hiccups. This was a fun moment with Eliza.
Thursday, February 21, 2008
Days 3 & 4
Day 4
I really enjoy taking the video of her. It's just amazing to have these moments captured and to be able to share them with family and friends. Hopefully it helps bridge the distance between us all.
Nurse Kayla checking the vitals. We have loved the nurses in the NICU. They are caring and attentive and just great. We know Eliza is always in good hands. What a blessing. I've enjoyed seeing the work they do because it gives me a little window into the life of my niece, Rebecca. Way to go, Rebecca! You are part of an amazing profession.
As soon as Brenna gets away from the doctors, with what do you think she is confronted? More doctors, of course! Savannah and Maddie were immediately on hand to tend to her every need (real and imagined). What good helpers! Conspicuous by his absence is Hunter who greeted mom at the door with his customary affection--giving her a big smile with a hug and kiss. Then, however, it was back to the Wii in his continuing quest to collect stars and save Luigi and find Princesses and whatever else it is that he does in Super Mario Galaxy. Mom comes home from the hospital, and all he wants to do is save the galaxy. Boys! What are we gonna do with them?
Paging Dr. Fillerup. Please report to the ER.
When did you say you graduated from med school? I mean, I liked Doogie Howser growing up, but this is a bit ridiculous!
Good times at the Fillerup house.
Tuesday, February 19, 2008
Day 2
More evidence of how tiny she is. Note the big blue tube at her face. That is what is blowing the air that forces her to keep her lungs open. The black eye cover is just what it looks like--giving her relief from light. She is under the bright lights for jaundice treatment, and the doctors say she is doing well. For those who know about these things her APGAR scores were 7 after 1 minute and 9 after 5 minutes.
What an experience--just holding her tiny hand.
Like I said, I love just gazing at her.
My turn to hold her tiny hand.
I love this--a little defiant fist thrown out to show she will succeed. The NICU nurses have refer to her as "feisty" and "a fighter." They also call her "the giant" because she is bigger than most of the pre-30 week premies they see. All of those names sound great to me.
OK, tomorrow is a new day. One day closer to Bren coming home, and one day closer to Eliza coming home, too, for that matter.